Category Archives: DSD Research Highlights

Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making

Research article published in an issue of the Journal of Pediatric Urology (https://www.ncbi.nlm.nih.gov/pubmed/28713007). Future fertility for individuals with differences of sex development: Parent attitudes and perspectives about decision-making Authors: Emilie K. Johnson, Ilina Rosoklija, Angela Shurba, Anthony D’Oro, Elisa J. … Continue reading

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Clinical practice guidelines for the care of girls and women with Turner syndrome: Proceedings from the 2016 Cincinnati International Turner Syndrome Meeting

Research article published in an issue of the European Journal of Endocrinology (https://www.ncbi.nlm.nih.gov/pubmed/?term=28705803). Clinical practice guidelines for the care of girls and women with Turner syndrome: Proceedings from the 2016 Cincinnati International Turner Syndrome Meeting Authors: Claus H Gravholt, Niels … Continue reading

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Fertility-Related Care for Gender and Sex Diverse Individuals: A Provider Needs-Assessment Survey

Research article published in an issue of the journal Transgender Health; widely available via PubMed Commons (PMC) (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5549540/). Fertility-Related Care for Gender and Sex Diverse Individuals: A Provider Needs-Assessment Survey Authors: Emilie K. Johnson, Diane Chen, Elisa J. Gordon, Ilina … Continue reading

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Disorders of sex development (DSD): Clinical service delivery in the United States

Research article published in a special issue of the American Journal of Medical Genetics (http://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.v175.2/issuetoc). Disorders of sex development (DSD): Clinical service delivery in the United States Authors: Aimee M. Rolston, Melissa Gardner, Kathleen van Leeuwen, Lauren Mohnach, Catherine Keegan, … Continue reading

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Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD—Translational research network

Research article published in a special issue of the American Journal of Medical Genetics (http://onlinelibrary.wiley.com/doi/10.1002/ajmg.c.v175.2/issuetoc). Interdisciplinary care in disorders/differences of sex development (DSD): The psychosocial component of the DSD- Translational research network. Authors: David E. Sandberg, Melissa Gardner, Nina Callens, … Continue reading

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Developing Multidisciplinary Teams

Advocacy Advisory Network member Mary Elizabeth Moran and Katarina Karkazis have recently published an article: “Developing a Multidisciplinary Team for Disorders of Sex Development: Planning, Implementation, and Operation Tools for Care Providers”. In this article, the authors discuss how a multidisciplinary … Continue reading

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