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Patients and Families

 

Animation of Prenatal Genital Development

The Hospital for Sick Children in Toronto has prepared a very helpful interactive graphic that can help explain the development of external genitalia and internal reproductive organs before birth, and some of the variations that can occur. The site has also been gradually adding more detailed explanations of several specific conditions. As of April 2008, AIS (androgen insensitivity syndrome), CAH (congenital adrenal hyperplasia), hypospadias, XY mosaiciscm, gonadal dysgenesis, and 5-alpha reductase deficiency were covered.

Visit Animation of Prenatal Development

 

 

Handbook for Parents

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The Handbook for Parents is an excellent source of information for parents, or for anyone looking for basic information about disorders of sex development.

 

For more information, to read a copy online, download a PDF or receive a printed copy for a donation, please visit the DSD Guidelines page.

 

 

 

YourChild Development & Behavior Resources website

YourChild
The University of Michigan has provided an extensive set of resources for parents of children with various health conditions. The YourChild Development & Behavior Resources website includes information about Disorders of Sex Development on the DSD Resources page. From there, you can also read more specifically about congenital adrenal hyperplasia (CAH) and Turner Syndrome. Parents of children with DSD may also find the associated podcasts helpful. Note especially the podcasts on DSD (available in two sections, part 1 and part 2), on delayed puberty, and on early puberty.

Quality Care Indicators

View a summary of indicators of high-quality interdisciplinary care for children with disorders of sex development (DSD).

Click to view.

Review Expert Presentations

Pediatric Academic Societies Mini-Course on DSD Disclosure, University of Michigan DSD Research and Quality Improvement Symposium, and more.

Click to review.

Questions Answered

Find clear answers to common questions about disorders of sex development (DSD) at Accord Alliance's Frequently Asked Questions page.

Click to access.

Clinical Pearls

At the Accord Alliance blog, specialists on dedicated DSD teams share their experiences with team-building, reimbursement issues, and more.

Click to read the blog.

Meetings Upcoming

Find dates and informational links for conferences on disorders of sex development (DSD), including meetings of clinicians and support groups.

Click to view.